The Disease

Four million children are born in the US each year, about 8000 new cases of childhood cancer are reported each year. Although Kaiser attempts to show a “research” back round, they do practice “stealth euthanasia”and this is what this site is about. It is more cost effective, and in the long run, it costs only lives, lives of children, and a void of research. Kaiser’s spends money on buying political opinion and telling YOU how great they are, neither of these tactics are illegal, they are immoral.

(There are 80,000 children born at Kaiser every year)

Another metabolic disorder you may be familiar with is Diabetes and it is metabolic, however this D2HGA is a rare disease (D-2 Hydroxyglutaric Aciduria or D2HGA) one of over 7000 “rare” diseases and counting. Evan produces much more D2HGA than you and I do which is “coded’ into the DNA as a mutation and CAN, not always effect the central nervous system.

Many diseases can include “other” disease, this would be the “severe” forms of of any specific disease. 99% of these kids and adults (as you see in the photos) are either a little heavy or well fed – only Evan is the exception. Why? D2HGA is not a factor in Evan’s condition, but the damage Kaiser caused during Brumley’s hospice created a much more severe situation for Evan.

The D2 Enzyme is produced in many organs: the heart, spleen, liver and a few others. The effect on any one child varies greatly, therefore the outcome can only be determined after the child ages enough to meet goals such as crawling, walking or talking, like autism, you just don’t know. Evan was 3 months old when Kaiser decided hospice was his only treatment. Measurements are in parts per million, So a child with a 200m/mol and a child with 1000m/mol(chemical measurement)could have the same outcome or they could both be normal or as scientists call it “Asymptomatic” = a carrier but not affected. A case study below, has two identical twin girls both with D2HGA, one has a 200m/mol and is greatly affected while the sister has 400+ m/mol and is Asymptomatic (normal). These twins have really melted the ice in this science world, but giving proof that there is no prediction until the child is OLDER to see what goals are met or not, and not the INFANT as in our case. Now, a simple explanation on how this disease works: Speaking of D2HGA type 2 only;

There is a defect in a gene that makes an enzyme called “isocitrate dehydrogenase”, this is where they get the name “IDH2”, When there is too much IDH, the body produces D2 Hydroxyglutaric Acid which “can” cause damage to brain nerves. This is why it is so unpredictable also, a child’s body can tolerate this enzyme and some cannot, some produce little and some a lot, and this is why some are not affected and some are mild, moderate or severe, but the high/low levels do not coincide with the severity. The D2HGA also fluctuates, so any one measurement is not accurate. Genes turn on and turn off, this is very apparent in a baby or child since the child is constantly growing. “Growth Spurts” often lead to higher measurements of the D2HGA, then the measurements taper down. Evan has “spurts” 7 months apart during our research study and these will, like in the past, get further & further apart until he matures to the point where he has no more down turns. This process is unknown to everyone and is exclusive to each child. Which also tells us we cannot be positive how this affects the outcome of the disease without waiting to see the outcome of the child, not the 3 month infant. Kaiser elected not to wait, so here we are.

In 2013 July. We used a clinical trial drug, we have lowered Evan’s D2HGA levels by 65%. This could only be done AFTER we uncovered a record that Kaiser threw-out/DESTROYED PURPOSELY & found  in 2012 well after Evan was born, a purposly missing record that showed Evan’s ONLY & FIRST diagnosis – TYPE 2 of D2HGA. Which means, we did not have a diagnosis before and after hospice began and ended ! This also stopped us from having our 3rd child<this I will never walk from.

What does that say about “Kaiser’s care/interest in research”. Here and in another Clinical study (in this site) it States how No Doctor, even a metabolic specialist cannot “Predict” a patients outcome, yet Kaiser wrote “HE WILL DIE” when Evan was 3 months old ! (in the CRIME page)

Read about this in MEDICAL RECORDS

There is no official treatment or cure for this disease and our clinical research had to stop due to the lack of care by Kaiser.

The 3 Drugs Kaiser used were an insult to Evan’s immune system, Brain development, and contraindicated at 3 months old or any age. How could he naturally fight the disease if his body was bombarded with the likes of Morphine? Nobody can, especially with an immune system that is still in development as was his brain. How can such a young liver deal with this invasion?. There is also a “Blood & Brain Barrier” that we all have, this protects the brain from invasion of all sorts. Only certain elements are allowed into the brain, Evan’s Blood Brian Barrier was very immature when the drugs were introduced as was his brain immature, so he didn’t really have the protection you & I have, yet Kaiser continued to destroy his chance to get “in front of” the disease, his natural protection was forever altered. This is why when we weaned Evan off Kaiser drugs his seizures Vanished. I feel their actions was like rubbing salt into an open sore, but they didn’t care, not one bit. Their treatment was like throwing leaves into the wind. The only “sure thing” was his death on drugs. Kaiser decided not to wait and see how Evan would react to the disease naturally, they decided to kill him at 3 months old and save the possibility of future expenses. They stated he would die before his 6th month, then said he would die 4 more times during the course of 2 years. Their prognosis was based on drugs, not science. Of course he would die with these non-productive & dangerous drugs, he is now 7 years old (2014) because of our intervention and removal of these 3 barbiturates after the overdose in 2007.

Metabolic disorders or inborn errors of metabolism (IEM) result from a block (partial or complete) to an essential pathway in the body’s metabolism. There are a large number of conditions included in this group of disorders. Management of metabolic disorders can be very complicated and should always involve close liaison with a metabolic physician. In this case, the Metabolic doctor was “left-out” of ANY care by the Genetic doctor Broome and hospice dr Brumley, this was intentional. Most of these disorders are inherited as autosomal recessive. Type 2 is not, it developes from that specific patient and not from parents, also called “DeNovo”. Many metabolic disorders present in the newborn period or shortly thereafter. Patients may present later, for example during intercurrent illnesses. High index of suspicion required to make diagnosis as the clinical presentation of most metabolic disorders is non-specific.

Below, now 8 years D2 HGA patient

Death can occur, but it is rare (the opposite of what Kaiser claims) and these deaths only occur with severe presentations like Cardiomyopathy, lack of intake, dysmorphic features, and or a prominent other disease which is often terminal, Evan has never had any of these symptoms. Most children (9.5 out of 10) or adults with D2 HGA are alive today and the oldest I know is Sherry and she is 30 years and considered Severe with Cardiomyopathy. D2 HGA was discovered in 1980, but determining type 1 or 2 is relatively new, either way HGA is present in blood and urine and its affects are the same all depending on that particular patient. The forms come with zero to mild to moderate to severe and Nowhere in clinical literature is it considered TERMINAL. Now, if the judge let Kaiser commit Perjury, broke our HIPAA laws – Kaiser is using our HIPAA laws against any lawsuit. Since records are supposed to be private we cannot find other cases unless the patient and /or parents decide to go public and finding case examples for court are paramount. HIPAA works against your defending your case and Kaiser knows this, but in this case Kaiser was allowed to break HIPAA laws ! 

Quoting Dr. Richard Dee Brumley of Kaiser hospice in his testimony he claimed(a general practitioner and geriatric hospice hack) to have a clinical study of 4 of 5 patients died. Brumley and his defense had 2 years+ up to the trial to present this study, but could not.

Dr. Richard Brumley, under Oath, stated he put this study in Evan’s file back in 2007, “But it must have fallen out” eq. They / he never found or produced this study for the court, it was a lie by Brumley the hospice doctor. I have read ALL clinical studies, as did my lawyer and Dr. Nyhan. We have never seen this so-called study, neither has Amsterdam (the Source Lab) Brumley made this false statement to show his innocence, which he is greatly void. Technically this is also perjury on his part, among many other statements Brumley made. He is a Rat running into his hole, a coward, our lowest form of life and he was found Negligent in court, but with Kaiser’s egregious influence, he will continue to practice w a clean record and lie to his new practice in family medicine. Brumley’s work can easily be replaced w the internet.

In comparison: The recent Covid19 Virus is contagious, Evan’s disease is Not, it is encoded in his DNA. Here are the official stats Covid19:

80.9% of infections are mild (with flu-like symptoms) and can recover at home.
13.8% are severe, developing severe diseases including pneumonia and shortness of breath.

THIS 94% is a good number b/c of developing immunities.
4.7% as critical and can include: respiratory failure, septic shock, and multi-organ failure.
in about 2% of reported cases the virus is fatal.
Risk of death increases the older you are.
Relatively few cases are seen among children.

Evan’s condition is extremely rare, maybe. 100 per billion, and like Covid 19 there are asymptomatic cases (we will never know the amount in either case) Mild, Moderate, and Severe being the very rarest. To install a hospice at 3 months old, Kaiser not having a diagnosis, intentional Torts by destroying medical records & medical science. D2 HGA patients are about 98% mild, some having only various degrees of autism, how can Kaiser say Evan is to die? This decision was only an economic one – to not only extinguish an infants life, but more importantly to save Kaiser money. Kaiser not only has extremely greedy doctors (capitation practices over real medicine), but they also have very incompetent doctors as seen in the crime page and others on this site. Kaiser is using their “clout”, their monetary influence with lobby’s and political hacks while holding a false “Not For Profit” designation creating a horrid so-called medical system.

Case example: Identical twins with D2HGA 2005

Abstract:

We report a set of 12-year-old monozygotic (MZ) female twins with D-2-hydroxyglutaric aciduria “One twin presented with multiple congenital anomalies, severe developmental delay, and abnormal neuroradiological findings, while the other had normal neurocognitive and neuroradiological phenotypes, without concomitant congenital abnormalities. Monozygosity of these twins implies that the differences in the clinical phenotype arise from postzygotic genetic changes, epigenetic differences, or environmental factors that influence the phenotypic response to biochemical perturbation rather than allelic or locus heterogeneity. Though the mechanistic role of these factors in D-2-HGA is far from apparent, the discordance in the phenotypes of these siblings establishes that these factors are at least as important as the nature of the mutant alleles in influencing the progression of the disorder.” In this case, the unaffected twin had double the D2HGA levels then the affected twin!.

What is a “Phenotype”?

Same species, different color, the different color is the phenotype. You can see a “phenotype” in language accents like “a New York” or “Texas” accent. It is often the environment that determines these differences. Another example would be, you buy two of the same baby orange trees, you plant one, the other you take out of the pot, scrape the dirt off the roots and throw it on the ground. You have two phenotypes, one altered by YOUR actions.

“The Phenotype” is explored with disease that has different outcomes as most diseases often have, so science studies phenotypes to explore treatments and cures to find patterns that may help “others”. If we euthanize every diabetic, we would never find a treatment. Kaiser used drugs, not a gun. A gun would be, illegal.

The phenotype of Evan has been destroyed by Kaiser’s hospice drugs, the sustained incorrect drugs and the Morphine overdose. If the phenotype is “altered” with unnatural means, then the example cannot be an example. He is useless to D2HGA science, as are the many that Kaiser has euthanized with rare diseases; this is where they are hurting everyone. This is explained further in the Amsterdam records that Dr. Broome “threw-out” to keep the lie secure – you can view this crime also in this site.

Evan had 3 measurements of D2HGA: 817, 802 and 450, because it varies according to diet, health and many other factors. I have read ALL the D2HGA clinical studies and not one state “TERMINAL”, but if you look up a terminal disease you will find the word “Terminal”. Evan’s measurements are average, not high. Have children died with D2HGA ? Yes , but as with all disease, if severe, it can produce “other” disease and as you will see, Evan had no other disease or symptom – ever, except being a drug addict.

You will see a black boy on this site,(in the DRUG LAWS) he is 10, his measurement goes up & down, his was 1800, twice as high as Evan, but no one tried to euthanize this boy, he is a happy good looking boy.

How could Kaiser conclude to euthanize Evan at 3 months old? They did this simply to save money.

They have no proof to substantiate a terminal illness & I will show this in their own documents.

Kaiser does this every day?; they have only been caught once! Right here, because Evan is alive. There would be NO lawsuit if Evan was dead, and here IS the issue-kill them so there is no lawsuit, then no lawyer would take the case b/c of MICRA which Kaiser has supported over the years with all their “not for profit money” .

On each page in this site I have a D2HGA child or adult, you can see (as well as a still photo can show) that many are normal like you and me, some have learning disabilities or delays, some are retarded, and in some cases, slight dysmorphic features. Kaiser stated TERMINAL many times in their documents as early as 3 months old, if this WAS a terminal disease, then ALL these children in this site should not be here, But there ARE severe cases pictured on this site-one in her 20’s !.

Evan has NO symptoms or features other than infantile seizures – Evan “was” a very mild case, Kaiser changed that at his and our family’s expense. There are over 100 clinical reports dating back to 1980 on D2HGA, It was discovered in 1976 by a Dr Chalmers and reported in 1980, here are a few………

D-2-Hydroxyglutaric aciduria 2006 Evans birth year

D-2-Hydroxyglutaric aciduria (D-2-HGA) is a neurometabolic inherited disorder first described in 1980. In the following years, it became clear that the clinical phenotype of the disease *varies widely from severe neonatal to asymptomatic. However, the sparse biochemical knowledge made D-2-HGA a poorly understood disease. “Much progress has been made in the last five years in various studies”, revealing two human enzymes that play a role in the metabolism of D-2-hydroxyglutarate. There are probably hundreds of these cases not recognized, but rather looked upon as autism. Without the proper test, we just don’t know how many. Therefore, there are most likely “carriers” that do not know they are carriers especially in the asymptomatic population (no symptoms). This will plague man for many years to come unfortunately, but to euthanize as Kaiser has tried in Evan is a slap in the face of medical science and to the human population. For every child Kaiser euthanizes, the ability to search for a cure to that particular disease is prolonged. This leaves the possibility for your own children to suffer if they were to obtain one of these 7000 + rare diseases.

D-2-hydroxyglutaric aciduria and glutaric aciduria type 1 in siblings: coincidence, or linked disorders?

Glutaric aciduria type 1 (GA1) and D-2-hydroxyglutaric aciduria ( D-2-HGA) are cerebral organic acidurias characterized by the excretion of 3-hydroxyglutaric and D-2-hydroxyglutaric acids, respectively. GA1 is caused by a deficiency of glutaryl-CoA dehydrogenase encoded by the GCDH gene; the biochemical and genetic basis of D-2-HGA is unknown. We diagnosed GA1 in the son of consanguineous Palestinian parents, and D-2-HGA in his sister and brother.

All three siblings were neurologically and developmentally normal.

************** **************

Whole-exome sequencing detects somatic mutations of IDH1 in metaphyseal chondromatosis with D-2-hydroxyglutaric aciduria (MC-HGA).

We used exome sequencing of blood DNA in four unrelated patients to identify the genetic basis of metaphyseal chondromatosis with urinary excretion of D-2-hydroxy-glutaric acid (MC-HGA), a rare entity comprising severe chondrodysplasia, organic aciduria,***** and variable cerebral involvement.***** No evidence for recessive mutations was found; instead, two patients showed mutations in IDH1 L-2-hydroxyglutaric aciduria is not what Evan has, he has the D form. L often starts later in life. “The L-2 form is more common, severe, and mainly affects the central nervous system. ” The basal ganglia are affected, and cystic cavitations in the white matter of the brain are common. This form is chronic, with early symptoms such as hypotonia, tremors, and epilepsy declining into spongiform leukoencephalopathy, muscular choreodystonia, mental retardation, and psychomotor regression. L and D are not the same disease. D-2-hydroxyglutaric aciduria is what Evan has, the D form becomes STATIC.

Static means, there is a point when it stops, this point is unknown and exclusive to each patient, so predicting an outcome is unknown unless the child suffers from a myopathy, but to encourage & destroy the patient has only been proven once, here, the others are dead.

The D2 form is rare, symptoms can include macrocephaly, cardiomyopathy, mental retardation, hypotonia or none of the above or one of the above. It can be associated with D2HGDH (type I) or IDH2 (type II). In Kaiser’s medical records, the doctors state that “L” is not as severe as “D” and this is not true, as you have just read by the scientists that HAVE studied this, the above clinical report states the opposite of Kaiser’s prediction, it is HOW it affects that particular patient. I look at these diseases as Autism with an explaination/source. Autism has now been often found, as these autistic patients age, also becomes static. Many D2HGA children are considered Autistic. This varies so much from patient to patient there is no way a doctor can say “at 3 months” how the infant will turn out, and NONE of these studies state TERMINAL, as you can see, this prognosis was reached in Kaiser’s pre-hospice assessment “HE WILL DIE” at 3 months old. NOTE;You can find “scientific proof” of Evan’s true outcome in the PLAYERS tab.

I know many that read this find much of this hard to understand, your not alone and we must give this to the scientists that research these rare diseases, and thank them too. Diabetes was not long ago lethal, yet today we have type 1 & type 2 and most have learned to live with it, thank a scientist. Again, what has Kaiser done here?, it is easy for a layman to see. You would think that every lawmaker would go to any length to prosecute each doctor involved in Evan’s lack of care. They have not, it’s hands off because of Kaiser’s money.

Here are just a few more clinical studies that explain the WIDE Spectrum:

The disease varies widely from severe neonatal to asymptomatic

Clinical phenotype can vary from a severe epileptic encephalopathy to normal

With both a mild and a severe phenotype and with unknown etiology

All three siblings were neurologically and developmentally normal

D-2 (D2HGA) is a rare autosomal recessive disorder with variable clinical expression

Evan has type 2, We only recently discovered Evan’s Diagnosis in 2012 after “finding” records that Dr Broome destroyed to keep Kaiser’s lie covered up, over 5 years after they destroyed him. Type 2 is linked to certain cancers and Evan’s blood is NOW part of this study in a cancer treatment, no he does not have cancer, but if Evan was euthanized in 2007, and if we did NOT find these test results from 2010(or the right scientist in 2012) his blood would NOT BE AVAILABLE ! True, his phenotype was destroyed by Kaiser and he is OUT of the clinical stats for D2HGA, but he has found purpose to science.

Just goes to show you what Kaiser thinks of preventative medicine, they promote it in their ads, but that is theater, this also applies to the Calif state medical board – one in the same evil and this is how they hurt you, even if you don’t subscribe to Kaiser. Two very guilty organizations that could care less about the public and the future of children.

This is politics (money) destroying life and future life, and these are children and babies, but most of these are silent deaths, never to be seen or heard from. Their lives were for nothing and our family was manipulated by the two authorities mentioned above.

If you Google “IDH2” you will see hundreds of Bio-Medical articles on the now popular Gene that has effected Evan’s life.

Amsterdam lab contacted Kaiser about Evan, no response. We now have Big Pharma’s contacting us, they want Evan for future tests, (They seek a possible cancer treatment) Kaiser did nothing and I would bet Dr Broome was sweating bullets because she never informed us of the final diagnosis, she never entered the results into records and surely she couldn’t now, now that we have the dated evidence that she slid them in her pocket to never be seen by the 4 members of this family.

This doctor will state, “I retired” but no, she WAS retired, she “retired” 1 year and 2 months AFTER she received Evan’s results and decided we would never be allowed to see our “carrier” status, so Kaiser dumped her as they did the hospice doctor. Kaiser doesn’t want these two doctors around if THIS case becomes public. Everything would be ok with Kaiser if Evan had died, they wouldn’t need to remove these two doctors at all.

We now have proof she received these vital tests.

This federal law that has been broken, a HIPPA law, a medical privacy law, yet your Feds will not lift a finger to hurt kaiser, your tax dollars at work here.

So even though the clinical reports may be “technical”, you can see that there is a WIDE SPECTRUM of outcomes for each patient and Evan has no severe symptoms, so we would take an educated guess that he was a mild case, yet Kaiser set him aside for destruction without question or science. Evan would rather be riding a bicycle today, than strapped to a wheelchair not knowing his own name. No clinical reports or experts say this is a terminal disease without other severe disease, so where did Kaiser find this prognosis

Their own paperwork is asking for a Substantial Reason for Terminal Illness and this was not done or explained anywhere to anyone, because it cannot be done ! and if it were, they could not kill him.

This document, Pre-Hospice Assessment was not seen by the Parents not until over 5 years later.

(Pre-Hospice Assessment)

This you will read in the next page

How many times has this been accomplished by kaiser ? Is Evan the first ? ………

NO, of course not, He is the first to survive, so we can tell you the story about the unknown children

As far as the “care” Evan received from kaiser, we cannot expect any one doctor to know about 7000+ rare diseases and that is why we have specialists and the information IS at their fingertips. I can come up with over 50 doctors that know how to handle this disease, Kaiser’s own Dr Mardach is one of these, yet her “input” was discarded though-out this 19 month ordeal-on purpose. Dr Broome could not have a Metabolic doctor in the way, especially being connected to the Metabolic community (as they are ALL very connected). The only time I talked again with Metabolics was, when the diagnosis came in from Amsterdam that Evan was a “D” type, not “L type”. On this day ……..

Dr Mardach (metabolics) told me to call Gurbani (neuro) “for new meds”, Gurbani told me to call Broome (genetics) “for new meds”, then of course Broome told me to call Gurbani “for new meds”. Gubani up’ed the dose, that’s it, no research, no calls to specialists that are in the know, if he did, “THEY” would raise a flag seeing what drugs were used, just as the ER doctor did during the overdose by calling the police.

There is obviously specialists that have studied and know about this disease as you have already read, cannot Kaiser call them and ask what to do ? If they did, they could not do what they tried to do to Evan, so they kept it to themselves -inside the Kaiser walls. The information was out there all the time and they knew it, we did not and that is why they moved in on Evan so fast and why the hidden paperwork. There is suspected forgeries too, this I cannot show.

If you were asked to do something “out of your expertise” you would hire experts, Kaiser has no interest in this and it could cost money. That is why Dr Mardach was “left-out”, there would be no way to euthanize Evan if people with expertise (and scientific interest) were included in his care and if you read on, there is VERY significant scientific interest for ALL of us. Kaiser threw that part out too.

Quote; From a reporter

“This is a travesty, not just for Evan, but all of us. A “so-called” hospital throwing away science for profit.”

STATS: from RARE.org

Rare and genetic diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.

While individual rare diseases have small patient populations, collectively the rare disease community is larger than the AIDS and Cancer communities combined. Despite its size, the community lacks of a unified voice, as only 15% of rare diseases have organizations or foundations providing support or driving research. It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment.

1 in 88 children today suffer from an Autism, many D2HGA children are Autistic, do we euthanize them?

Quote, clinical scientist; “With Kaiser killing-off these rare patients, how will we discover treatments?”

If you are interested in who would do this to a baby, click the “PLAYERS” tab and see.