Hospice 10/31/08
TRANSLATION:
Evan’s father is especially distraught & angry. He states several times how “upside down his & his family’s life is” He is concerned about the health and well being of his (7) year old daughter.
Family is waiting for results of genetic testing to determine if anyone is a carrier of the metabolic disorder. He expressed interest in having Email communication with doctors involved in patients care.
He thought additional services were going to be needed.
END TRANSLATION
In this record the father is still angry – of course! As far as the genetic testing is concerned, we would not know these results EVER if it wasn’t for one of the hired experts in 2012, five years later.
The deception continued for years and the visits from hospice became less and less for two reasons; One, we didn’t want these “people” around our child or family because now we knew they caused all of this hell in our lives and two, hospice was afraid of the father at this point and they had good reason, they had destroyed his son.
Evan at this point was doing as well as he could despite his rotting teeth. The doctors (specialists) NEVER communicated with the family as requested through email – not even once, which tells you more about them. Hospice would continue to make biweekly, then monthly calls only but Evan was still in hospice.
The Nurse said, in doctor to doctor communication that the “caregivers” (if you want to call them that) are in possible danger because father has a possibility of violence. Again, their concern was never for Evan, only themselves. This was used as an excuse, they didn’t want to visit. There were many more pages of hospice, but I thought to leave many out of this site, I hope you got the idea what has happened here, In these last few pages or the 19th month of hospice we already had seen experts and knew our lives would be loaded down with lawsuits and anger, but that is what these people caused.
I would like to know how these “people” would feel IF their children were treated in this manner.
The Kaiser doctors just plain abandoned Evan forever and they said his care was pretty dam good, you can’t expect them to say anything otherwise. If there is anything called Karma, I wouldn’t want to be them.