Hospice 7/11/07
TRANSLATION:
A non-visit record; Mother thought Evan’s seizures had decreased in frequency & duration after she stopped the phenobarbital (soon after a doctor brought it back)
Evan still on Morphine & Ativan. Then they started AROUND the clock a week later (this was one of the two 72 hour non-stop seizure events) Evan was seizing uncontrolled & was congested.
END TRANSLATION
All this was, was drug abuse by Kaiser and Evan was suffering brain damage from the seizures & lack of oxygen during those seizures. As you can see Evan’s mother was afraid to use the drugs, but the parents had little idea that the drugs were absolutely sustaining his condition.
Always the drugs, never called into question, except by us. No one said anything about withdrawals or “if” we did stop a drug it would cause new symptoms. This was a tiny baby ! Their cruelty now that we can look back, was just unspeakable.
No specialists were called in to question the drugs or their use. The metabolic doctor was left out of the treatment all together. She would have asked “why are you using these drugs” I know this for a fact as I know her associates and they all know each other.
Does this make sense yet? Evan is 6 years old today. They stated in the records about his “terminal illness” (that has no science to back up this statement) that as long as the disease follows it’s “normal course”.
What is normal or natural about this? This record was buried until 2012 as so many were.